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                          2010

                              

Articles:

A NEW YEAR... TO EXERCISE
CAPSULE ENDOSCOPY UPDATE
CONTINUE YOUR SOCIAL LIFE WITH AN OSTOMY
EXERCISE: THE FINAL INGREDIENT IN OSTOMY MANAGEMENT
INFECTIONS IN UROSTOMIES
MY DOCTOR SAID I HAVE A HERNIA
OSTOMY OBSERVATIONS
SOOOOOO - HOW DO I CLEAN THIS POUCH?
TEMPORARY OSTOMIES
TSA CHANGES PROHIBITED ITEMS LIST TO ALLOW OSTOMY SOOOOOO - HOW DO I CLEAN THIS POUCH?
UROSTOMATES & FLUIDS
VISITING A PATIENT WITH A TEMPORARY OSTOMY - A PERSONAL REFLECTION
WHAT OSTOMATES SHOULD KNOW ABOUT DRUGS

A LETTER FROM OUR CHAPTER PRESIDENT

HELP WANTED

CHAPTER MEMBER DUES

E-MAIL THIS NEWSLETTER TO A FRIEND

OUR LIST OF SPONSORS

ARTICLES
A NEW YEAR... TO EXERCISE
December UOAA Update

Was exercise at the top of your New Year's resolution list, only to be replaced with a set of excuses a week later? Well, let's see what those excuses may be:
 . I don't have time. One less cup of coffee in the morning and a few more minutes in your busy day taken from other
   less beneficial activities will add up! Say to yourself, "I'm worth 30 minutes a day !"

 . Boring, boring!  Exercise is not a dirty word or a second job without pay! Find something you    enjoy, and you just might stay with it.

  . Too tired:  Studies have proven that exercise revs up the bloodstream which produces energy.
 
    A brisk walk in the cool of the evening will relax and revive you - it may even add to romance!

  . Too old: Oh, please! Have you seen Sophia Loren lately? She may have been born beautiful, but  staying there is no gift. But don't have unrealistic expectations, just go at your own pace.
 
    You just might inspire some youth in your life to want to find out how you do it.

  . Not enough space: All you need is enough room to lie down - but avoid drafts which may cause muscle cramps.
 
   Or better yet, go walking outdoors. That will use all your muscles and you get fresh air to boot!  

  . Too expensive You don't need fashionable regalia and the high-prices equipment.  If you plan on walking, a good, but not necessarily really expensive, pair of shoes is all that is required.

  . Too painful: "No pain/No gain" does not apply here. You don't have to agonize to exercise.
    Take care of your body and it will reward you in return.

   . But I have an ostomy: Physical therapists tell us that you can do anything if your incision is healed.
     Rough contact sports are the exception. Your pouch will not fall off, and your other muscles in your body don't care how you eliminate!! They need attention, too!

  . Try it!! Take a new ostomate {or an "old" one) for a walk, take time to converse and enjoy.
    You sur
vived your ostomy surgery -- you are alive -- take the chance to live your new life in the New Year!!

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CAPSULE ENDOSCOPY UPDATE
by Bob Baumel, based on presentation given April 18, 2005 by Terrie Wright,
Stillwater Medical Center Endoscopy Nurse to Stillwater-Ponca City (OK) UOA Chapter

Slightly over a year ago, Dr. Swafford spoke at our Feb 2004 meeting to describe Capsule Endoscopy, the technique where a patient swallows a capsule containing a miniaturized camera (with its own light source, radio transmitter and battery) which has proven to be a major advance in diagnosing problems in the small intestine. Now at our April 2005 meeting, Terrie Wright, the endoscopy nurse at Stillwater Medical Center, updated us on more recent experience and presented a computerized slide show provided by Given Imaging, the company that makes the capsule.

We learned that Given’s capsule, which they originally sold with the name M2A™ (“mouth to anus”), has been renamed the PillCam™ SB (for “small bowel”), as they now also have a version called the PillCam™ ESO for imaging the esophagus. The original SB capsule has a camera at one end and takes 2 pictures per second which are recorded for a total of 8 hours. The ESO capsule has cameras at both ends and takes 14 pictures per second which are recorded for only about 5 minutes. Of course, the esophagus can also be imaged by more conventional endoscopy, but patients may prefer the capsule method, as it avoids discomfort and doesn’t require sedation.

We also learned that capsule endoscopy has been approved for pediatric use (in children aged 10 or over). Given now sells a pediatric accessory kit for this purpose with a recorder belt and sensor array more appropriately sized for children. (The capsule itself is the same type used by adults.)

Given has also made improvements in their data recorder and the software used by the physician for interpreting/reviewing the recorded images. These include better ability to determine the locations where images are recorded and automatic highlighting by the software of possible pathologies in the images.

Terrie told us that, so far, the capsule technique has been used more in Europe than in the United States, but it is gradually becoming available at more U.S. locations.

Following last year’s presentation by Dr. Swafford, I was somewhat concerned whether ileostomates could easily excrete the capsule following examination, or if it might get stuck behind the stoma in the same way that ileostomates may get food blockages. In practice, this doesn’t seem to have been much of a problem. Any possible stricture or narrowing in the intestine does need to be considered, as the capsule could possibly get lodged and need to be removed surgically. But the risks must always be weighed against expected benefits of the procedure.

Our own member, Ruby, who underwent this procedure, is an ileostomate. Ruby was suffering from severe blockage due to stenosis (narrowing) of part of her intestine. She clearly needed surgery to remove the stenotic region. It was judged that the extra diagnostic information provided by capsule endoscopy could be very helpful, while the risk of the capsule getting stuck was unimportant, considering that she was going to have surgery in any case. As it happened, the capsule didn’t get stuck. It took about a day and a half to get past the narrowed region of intestine, but then had no difficulty passing out through her stoma.

Note: Ruby has now had the surgery to remove the stenotic portion of intestine and is doing fine.

According to Given’s literature, the capsule procedure is contraindicated under the following conditions:

While the capsule is inside the patient’s body, it is important to avoid exposure to strong electromagnetic fields such as created by MRI devices. The capsule includes magnetic materials and, if exposed to strong fields, may undergo violent motion, possibly causing serious damage to the intestinal tract or abdominal cavity.

For more information, see Given’s website at http://www.givenimaging.com/.  

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CONTINUE YOUR SOCIAL LIFE WITH AN OSTOMY

Your social life can be as active as it was before surgery. restroom after eating, and nobody will think it is unusual if You can enjoy all activities: meeting people, attending concerts, sporting events, civic and social club meetings, parties, religious occasions, or whatever you enjoyed before. The first time you go out of the house after surgery, you may feel as if everyone is staring at your appliance, even though it is not visible under your clothing. You can feel your appliance on your body, but no one can see it. Keep these questions in mind: Did you know what an ostomy was or where a stoma was located or what it looked like before you had surgery?

For those with colostomies or ileostomies, you may also worry about your pouch filling with gas and sticking out under your clothing. A quick trip to the restroom can take care of this problem. If you are worried about your pouch filling up immediately after eating at a social event, remember that people without ostomies often need to go to the restroom after eating, and nobody will think it unusual if you do the same! You probably will find that you need to empty your pouch less often than you need to urinate.

You may be wondering about your relationships with others. Now that you have an ostomy, you may feel that it will change your present relationships and decrease new opportunities for friendship and love. True friendships and deep relationships on any level are built on trust and mutual understanding. These qualities depend on you and other persons. You have the same qualities you had before surgery, and your ability to develop friendships is unchanged. If you care about yourself, others will feel your strength and will not be deterred. If your ostomy does cause a break in friendship, a relationship, or even a marriage, this relationship was not built on trust and mutual respect, and would have crumbled some time in the future anyway.

- via Green Bay, WI, The Pouch, N. VA & GB News Review     

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EXERCISE: THE FINAL INGREDIENT IN OSTOMY MANAGEMENT
Adapted from the Coloplast Website, UOAA Update Sept 07

Exercise has become fashionable" -- and that has probably done more to put
people off it than anything else.
If the thought of strobe lights, rowing machines and leotards gives you the shivers,
then take heart. There are no end of easy, enjoyable ways to make yourself a little stronger,
a little fitter. Just find the ones that are right for you.
Most of all, don't overdo it. Even light exercise is good exercise - for joints, your muscles,

your lungs and for your general sense of well-being. Gently does it.
To begin with, don't confuse exercise with sports. There's more to getting healthier than chasing
a ball around on a football field. Walking is a great place to start.
Post-operatively, just walking to the next door neighbors or to the end of the garden is fine.
When you begin to regain your strength, try to walk more - both for pleasure
and as an alternative means of transport. And when you do, walk briskly - so you get slightly out of breath.
Gardening is great, too. Digging, weeding, hoeing and mowing can constitute a superb day's workout.
And of course you'll have a showpiece garden to show for it.
Wait for about 3 months after surgery before beginning gardening.
You'll be surprised at bow quickly you feel the benefits. After a few aches in the early
days, you'll begin to feel more supple, and be able to do more without getting out of breath.
Doctor's orders - All doctors agree on the benefits of exercise - but it's a good idea to talk to
your doctor before starting an exercise program, especially if you're very out of practice or if
you have other health considerations, like asthma or a hearth condition. Your doctor will advise
you to take it easy to begin with and to enjoy yourself. And you can't get better advice than that.

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INFECTIONS IN UROSTOMIES

Germs are all over the world, but when they are in the urinary tract, either in the conduit,
the urethras, or the kidneys, they're in  an abnormal location and that is what causes an infection.
What causes infection? Mostly the reasons are unexplainable. Why do some people get more
colds than others? Infections can be caused by an obstruction, kidney stones, tumors, cysts or scar tissues,
Almost synonymous with obstructions is infection and then, too, often comes stone formation.
You can't get rid of the infection. It's kind of a cycle that goes around and around. Infection can be
caused by urine being forced back to the kidneys through the conduit. This could be done by falling
asleep with the pouch full of urine and accidentally rolling over oil the pouch, causing urine to be
forced back into the stoma, through the urinary tract with tremendous pressure. Invariably the urine in the
pouch will be contaminated.
In general, to prevent and treat infections, you need a good flow of urine much like a stream.
That not only dilutes the bacteria of germs in the urine, but also helps wash them out.
Two and one-half quarts of liquids daily is required for the average adult.

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MY DOCTOR SAID I HAVE A HERNIA 

Dr. R.B. Kelleck, Great Britain, Via Snohomish Insights  

The new ileostomate may find it difficult to believe that life without a colon can be completely healthy. To understand this, one needs to know what is the normal function of the colon or large bowel which has been removed. This organ is only found in land animals and its major function is to absorb water from the food residue. When animals first moved from the sea to the land they moved from a world where water was plentiful to one where it might be very scarce and they adapted to this by developing the colon as one means of avoiding dehydration. The only other substance that is absorbed from the colon is salt. All the other things we get from our food and which we need for energy and health are absorbed from the small intestine which is unaffected by the usual operations for ulcerative colitis. People with an ileostomy get just as much food - whether carbohydrates, fats or proteins - as anyone else. The other function of the colon is to act as a reservoir for the waste products of the body until there is a convenient moment for disposing of them. This function is simply taken over by the pouch whether external or internal.

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OSTOMY OBSERVATIONS

By Renard Narcaroti 

It is very common from our experience at the Chapter that when people come home after having ostomy surgery that there will be a brief period of grief and mourning. However, you should only have this feeling for a short period. . . it should only be temporary. As you once again return slowly to an active lifestyle, you will be transformed to the person you once were before the surgery or the disease/cir­cumstances that brought you to this point. If depres­sion lingers or is severe, this is not normal. You should see your doctor. He/she can help you with these feelings. Often they are caused by the shock of surgery to your system, the psychological adjustment to being well or a chemical imbalance. Your doctor has ways to help you so that you may be back to yourself once again.

If you have an ostomy, you should learn all you can about it, not only for your own sake, but also for the sake of setting a good example and being able to advise others with an ostomy. You will at sometime have the opportunity to educate someone about this life saving surgery and alleviate his/her fears. Never, ever, be embarrassed about having an ostomy. You will be amazed at how many people will truly admire your for the courage you show in adapting to the ostomy. Remember, there are very few, if any, people who never have any medical problems during their lifetimes.

While you are learning about your new life, know how to change your ostomy system. New people reg­ularly come to our meetings and tell us that they have someone else change their pouch. . . this always sur­prises us. This may be acceptable for a brief time, while one recuperates, and it is good for a family member to know how to change it in an emergency. Nevertheless, not to do it yourself is equivalent to a normal person not wanting to sit on the toilet and do his/her business by himself/herself. This habit needs to be changed in order to have a better quality-of-life and to adapt to changing circumstances, i.e., when nobody else is around.

Be proud of your ostomy. Do not act as if by own­ing an ostomy that you are less of a person or some­how a less complete person. You are just one of the sporty new front-end exhaust models.

Develop a support system of people you can count on to assist you with ostomy issues. Your ostomy nurse, your friends and relatives, and your local osto­my support group are proven ways that work. There are over a half-million of us in the United States, you are far from alone. Most importantly, we are very glad to be alive. For most of us, the alternatives for not choosing ostomy surgery would have resulted in our deaths.

Another observation from talking to our members is that we Americans seem to like to compete with ourselves to wear our ostomy systems as long as pos­sible. Why do we do this? There is no prize given for the longest wear time. We have one member who would wait until he had a leak before he changed his ostomy system. We vigorously tried to persuade him that it is better to have a regular routine, e.g., using the best practice of changing one's ostomy system every three to four days. Having one accident is so much worse than changing it at regular, responsible times that this should never even be considered an option.

The number one concern with people about to have ostomy surgery is odor, according to multiple surveys performed by ostomy nurses. Know this; we have less of a problem with odor than normal people do. Modem pouching systems are completely odor­proof when closed. Under clothing, people with ostomies absolutely have fewer parts exposed to make odors then normal people. Everybody creates some odors in the bathroom -- just like you and me.

Another observation published by recent medical studies is that we will stay healthier when we exer­cise regularly -- than means at least a half-hour every single day -- as long as this is safe for you to perform. We must also consume a low fat diet and drink at least 64 ounces of water a day. If you have an osto­my and do not drink enough water, you are asking for trouble.

Advances in surgery and drug therapy have pro­vided us an opportunity to experience a "second cha6ce" at life. If we lived in many other countries, or before WWII, we would probably be dead right now. However, we are not. We are alive and well. Be happy, you have been given a new life.

 Return to Articles

 SOOOOOO - HOW DO I CLEAN THIS POUCH?

If you are cleaning a drainable two piece pouch for reuse, use warm, rather than hot or cold water. Cold water doesn't lift stool or urine as readily from the plastic and the pouch is less pliable.  Hot water will cause the pouch to wear out faster and may increase the likelihood of odor. If you want to rinse the pouch while you're still wearing it, use a small squirt bottle to get the water in it, slosh it around by holding the end and let things empty into the toilet. Unless you have no option, it's best to remove the pouch entirely for cleaning. A bit of ordinary dish detergent with warm water or, if bacteria is a concern, a bit of white vinegar mixed with water will do the trick. Fill the pouch with the warm water/soap/vinegar solution and slosh it by hand over the toilet, drain and repeat as necessary. It's not recommended that you wash these things in the sink - the drains are usually too small to handle this sort of waste and the result will not be hygienic. Once you have things reasonably clean, you can hold the pouch under the bathtub faucet and let it rinse. Tub drains are larger and, so long as you let a good flush of water follow, and scrub the bathtub faucet and let it rinse.  Tub drains are larger and, so long as you let a flush of water follow, and scrub the bathtub on a regular basis (which you do anyway, right?) your bathroom will not smell. Baking soda in the wash water and down the drain is an excellent deodorizer. You can hang the wet pouch by the ring on the hook to dry or just leave it flat on a towel and it will be ready for use the next day. The inside doesn't have to be bone dry for use, but the outside and ring should be. A lot of products have a thin fabric covering on them - nice against the skin when dry but very uncomfortable if damp. Make sure that part is dry before putting it back on.

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TEMPORARY OSTOMIES  

by Nancy Brede, RN, ET, Via The Pouch, The New Outlook, Chicago


Temporary ostomies are surgically created with the intent of reconnecting in the future. The anatomy of the gastroin­testinal system or urinary system is left intact.

Permanent ostomies are created with the intent that the ostomy surgery will not be reversed - usually the anatomy in the gastrointestinal or urinary system has been removed. Permanent ostomy surgery is usually performed when dis­ease or injury prevents maintaining the anatomical struc­tures needed for reversal.

A large number of temporary ostomies involving the colon are done on an emergency basis. The colon becomes obstructed or blocked, and stool cannot pass through. Because of the emergency nature of the surgery, the bowel cannot be cleaned and prepared ahead of time. Reversals ­ re-anastomosis or hooking the normal anatomy backup - then can be done later, when infection is not as likely and proper healing can take place. The most common situations and diseases requiring a temporary colostomy are:

Cancer of the colon with obstruction - or other abdomi­nal cancer affecting the colon. Hirschsprung's disease, a disorder or malfunction in infants that prevents the passage of stool. Due to a lack of nerve cells in certain areas of the large intestine, stool is not moved through and an ostomy is necessary. Diverticulitis, a small out-pouching in the wall of the intestine, called diverticula, become infected. The diverticula may rupture or cause obstruction. Crohn's Disease may necessitate a temporary ostomy to allow the diseased bowel to heal.

Persons with temporary ostomies face many of the same problems permanent ostomates have. It's just as important for them to have support, reassurance, and teaching as it is for persons with permanent ostomies. They must learn proper skin care, stoma care, and pouching techniques. Often, stomas are not ideally situated on the abdomen, because of the urgency of the surgery. Thus, pouching and skin care can post difficult problems.

Following temporary surgery, measures need to be taken to improve the patient's health. He /she must be in the best condition physically. to undergo the major surgery for reconnection. There is also a time for the patient to deal psychologically with past surgery, upcoming surgery, and possibly a newly-diagnosed disease. It may be a difficult time with all the changes and new challenges. Often, there are many fears and unanswered questions. Other people with ostomies and ostomy nurses may provide reassurance and the answers to these questions.

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TSA CHANGES PROHIBITED ITEMS LIST TO ALLOW OSTOMY SCISSORS ABOARD

TSA Changes Prohibited Items List to Allow Ostomy Scissors Aboard 
PR Newswire (press release) - New York,NY,USA
WASHINGTON, Aug. 30 /PRNewswire/ --

  TSA is modifying the interpretive rule to exempt ostomy scissors from the prohibited items list.  Ostomy scissors
with pointed tips with an overall length of four inches or less are permitted

when they are accompanied by an ostomate supply kit containing related
supplies, such as collection pouches, wafers, positioning plates, tubing, or
adhesives.
    There are an estimated 750,000 ostomates in the United States.  While
specific data on the number of ostomates who use air transportation is not
available, TSA has heard from individuals with ostomies who say they avoid air travel in part because they cannot carry these particular scissors.
    Allowing this limited exception to TSA's prohibition on metal pointed scissors removes a barrier to ostomates traveling by air without negatively impacting aviation security.

    For more information on TSA, please visit our Web site at
http://www.tsa.gov.


   
CONTACT:  TSA Public Affairs, +1-571-227-2829

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UROSTOMATES & FLUIDS

People with urinary diversion no longer have a storage area, a bladder, for urine.
Therefore urine should flow from the stoma as fast as the kidneys can make it.
In fact, if your urinary stoma has no drainage for even an hour, it is time for serious concern.
The distance from the stoma to the kidney is markedly reduced after urinary diversion surgery.
Any external bacteria have a short route to the kidneys.
Since kidney infection can occur rapidly and be devastating, prevention is essential.
Wearing clean appliances and frequent emptying are vital. Equally important is adequate fluid intake,
particularly fluids which acidify the urine and decrease problems of odor.
In warm weather, with increased activity, or with a fever, fluids should be increased to make up for body
losses due to perspiration and increased metabolism. It is important that you be aware of the symptoms
of a kidney infection: elevated temperature, chills; low back pain; cloudy, bloody urine; decreased urine output.

All ileal conduits normally produce mucus threads in the urine which give it a cloudy appearance.
Bloody urine is a danger signal. Thirst is a great index of fluid needs. If you are thirsty, drink up.
Also develop the habit of sampling every time you pass a drinking fountain.
Important - if urine is collected for urinalysis, called C&S, sterile specimen,
checking urine for infection, etc., be sure your doctor and nurse know that a sterile
specimen, must be taken directly from your stoma and not from the pouch
Bacteria builds up in the pouch immediately. It will give false test results .lf they are

not sure how to do this, do the following: remove your pouch; clean the stoma;
bend over; catch the urine in a sterile cup. If there is a slow flow of urine being expelled;
drink a glass or two of water - the kidneys will work. Urostomates who do not use a night
drain are running a big risk of puddling and the backing up of urine into the conduit up to the kidneys.
This may cause not only irritation but serious infection. . .
   

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VISITING A PATIENT WITH A TEMPORARY OSTOMY - A PERSONAL REFLECTION
 

from Regina (SK) Newsletter; via S Brevard (FL) Ostomy Newsletter

As a certified visitor with the local ostomy chapter, I have had many occasions over the years to visit patients who have just undergone surgery that left them with a temporary ostomy. Usually a temporary ostomy is done on an emergency basis, as the result of a blockage or obstruction in the colon. This may be the result of diverticulitis, colon cancer, inflammatory bowel disease or Crohn's disease, and the result is a temporary ostomy to allow the bowel to heal. The intent is to reconnect the bowel at a later time, and many patients are told by the attending physician to expect to have an ostomy for anywhere from three to nine months.

My first thought as I headed off to visit a patient with a temporary ostomy was that this would be a piece of cake, and the visit would involve lots of questions about management of the ostomy. I also figured that the patient would be greatly relieved knowing they would not have to deal with an ostomy on a permanent basis. Boy, was I wrong!

This particular patient was angry beyond all belief, upset with what had happened to her and definitely not prepared to deal with anything as disfiguring as a colostomy. To be sure, she wasn't angry with me, but the medical profession as a whole suffered her wrath and it was quite evident that the nursing staff gave her a wide berth. She was NOT going to like this ostomy thing! Not having encountered this kind of reaction before, I wasn't exactly sure how to proceed, but I found myself listening to her frustrations and empathizing with her situation. This calmed her somewhat and she told me that I was the first person who had not treated lightly her fears about the ostomy. She felt people did not take her seriously because hers was only a temporary situation.

The visit actually went fairly well after that and although she was still angry with many things, I left feeling that she would manage her colostomy quite well in the short period of time she would have it. It impressed upon me that people with temporary ostomies struggle with the same fears and anxieties that all of us who have permanent ostomies do. In addition to this, because the surgery is done on an emergency basis, they have absolutely no time to prepare themselves for the eventual outcome, the ostomy.

Do I sound like an all-knowing and understanding saint?? Well, I don't feel like one on some of these visits. In general, I find most persons who have just had surgery resulting in a temporary ostomy to be very upset and unusually angry. They just hadn't expected this! I am sympathetic, as mentioned before, but the thought also crosses my mind, "Deal with it!" Recently, I paid a visit to a woman who, after her emergency surgery, asked me how I could tolerate having a permanent ostomy! At that moment it seemed bizarre that I should be counseling her when I am the one who has to live with this thing on a full-time basis. She could look forward to a reversal. On the other hand, hard as it may sound, her comment actually helped me and I didn't have to hesitate a second for the answer. I know I cope with it because I wouldn't be here if it weren't for my surgery for colorectal cancer. I was 37 at the time and I suppose I had every reason to be angry but I wanted so desperately to live. The surgery and colostomy gave me a second chance at life, for which I am grateful.

I would like to be able to remind some of the people who have to live with temporary ostomies that their surgery likely saved their lives too, and that a few months is really not such a long time to live with an ostomy. But I also have to remember how very frightening this surgery is and how it is still considered such an awful thing to have an ostomy. Despite our attempts to educate the public about the normal lives we lead, who among us wouldn't choose not to have an ostomy? So I internalize my thoughts and sympathize and try to make the patient feel better about coping with their new situation. But a question still lingers: Why do some people marvel at their good fortune while others retreat into anger and disgust? We humans are a complex lot.  

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WHAT OSTOMATES SHOULD KNOW ABOUT DRUGS

Via St. Paul Pacesetter

Liquids are faster acting than pills or gel caps. The degree of compression of a tablet determines the rate that medicine is dissolved in one's system. Vitamins should be taken on a full stomach or else they will irritate the lining of the stomach and produce the sensation of feeling hungry. The amount of absorption is based on the amount of intestines still intact; therefore, the type of drugs taken must be in accordance with how much absorption "power" you have. Time-release capsules are NOT for the ileostomate. Time release medicine will completely dissolve at once if alcohol is consumed with it or shortly afterwards. Most medication is available in a variety of forms. Be sure to tell your pharmacist that you have an ostomy so he or she can provide the right form of prescribed medication. The following precautions are offered to avoid food and drug interactions that can reduce the effectiveness of prescription drugs.

. Don't mix medicine into hot beverages. Heat can destroy or alter drug ingredients.

. Don't stir medications into food which can destroy the release mechanism of certain drugs.

 . Real all directions, warnings and precautions about your medication.

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A LETTER FROM OUR CHAPTER PRESIDENT

The Philadelphia Ostomy Association is a completely separate and independent charitable organization from UOAA. Our organization has been chartered in Philadelphia since 1949 and have had our own 501(c).3 tax number for over 40 years. The Philadelphia Ostomy Association was founded by a group of World War II Ostomy Veterans at Valley Forge Military Hospital. We also were one of the founding chapters of the UOA. We were here long before UOAA and God willing we'll be here long after UOA.

The Philadelphia Ostomy Association and satellite support group the Abington Ostomy Support-Group are completely-voluntary organizations; none of our officers, board members or visitor's to new ostomates receive any remuneration for their time or efforts. Our mission to help in the psycho-social rehabilitation of ostomates of all types, will continue, unaffected by whatever happens to the national organization -- The United Ostomy Association of America

If you're an E.T. or W.O.C.N. Nurse. Social Worker. Medical Professional. Patient. or Family Member that wants to find the closest UOA Chapter in the Delaware Valley or provide a visit for an ostomy patient and you receive this newsletter, Call1.877.0STOMY2 for information.

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 HELP WANTED

Our chapter is in great need of people who are willing to volunteer some of their time to assist our Officers and Board of Directors in the tasks necessary in keeping our chapter functioning.  Many of these folks work full-time jobs and have families and other responsibilities, which also demand their time, and yet they continue to take on added responsibilities to keep the chapter going and to better serve you, our members.  Many of us have reached, or are rapidly approaching, the point of frustration.  Our Visitor Coordinator has already resigned.

Some of you have been approached at our meetings or by phone and asked if you would be willing to help us out, but we haven’t gotten many positive responses.  As a chapter with over 200 members, we do not want to have any more of our “workers” reach their “burn-out” point.  None of us want to see the chapter fold because there is no one willing to accept the responsibilities of keeping things going. Would you please give some serious thought to the support, information and friendships our chapter has provided for you, and consider stepping up and volunteering to take a more active role?  People are needed to help with the Visitors’ Program, the Help Hotline, programs for our meetings, and the Regional Conference being planned for November.    Contact any of the Officers or Board of Directors and let us know that we can count on your help.  Thank you!

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CHAPTER MEMBER DUES

THE PHILADELPHIA OSTOMY ASSOCIATION, INC.

P.O. BOX 14343

Philadelphia, PA  19115

Dear Chapter Member: 

It is time once again to renew your support to the Philadelphia Ostomy Association, Inc. Your dues help support all of our local activities, bi-Monthly meetings, the publication of  The Journal, our visitation program,  the state advocacy program and our website at: http://www.philaost.org

 Our current dues are $15.00 a year.  I am asking for this minimum contribution. All of your contributions are tax deductible. 

For this small amount of money, you will be helping new and future ostomates as well as help our organization remain strong and viable.

We invite you to attend our educational meetings. The programs cover a variety of topics and frequently feature medical professional as speakers. Following the program, time is devoted to speaking with other ostomates or consulting with the professionals with any questions you may have.

In addition to attendance at meetings, there are other ways you can actively participate.  You may be interested in serving on one of our committees.  We invite you to contribute your special talents!

Local dues support the following services: 

                             -    Visitor Programs

-    The Journal  (our chapter newsletter)

-    Our Chapter Website,  http://www.philaost.org
     and  Journal Online

-    Educational and support group meetings –
    discussions about self-care, psycho-social
    issues, rap sessions and sharing of
    personal tips

-   Social events like our May Vendors’ Fair
and Stoma Clinic 

-   National Networks – Continent Diversion (CDN), GLO, Parents’ Network, Teens,
Young Adults (YAN) and 30 Plus 

Thank you very much for your participation and support.

Sincerely, 

Sheldon Sokol

President

Philadelphia Ostomy Association

                              

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